Pocono Parents of Children with Down Syndrome (PPODS) is a non-profit family and community based organization located in northeastern Pennsylvania. Our mission is to develop and implement programs that will further enhance the lives of individuals with Down Syndrome, support families and promote community awareness, social integration and educational enrichment.
PPODS hosts monthly meetings on the campus of East Stroudsburg University for families with children with Down Syndrome and anyone else who would like to learn more about Down Syndrome or support our mission. We also host social events and an annual Buddy Walk in partnership with the National Down Syndrome Society.
If you would like more information about PPODS, please come to one of our meetings or contact us by clicking on our contacts page.
DID YOU HEAR?
Have you been affected by the waiting lists in Pennsylvania to receive community services for individuals with intellectual disabilities? The Vision for Equality and the Waiting List campaign are gathering family/individual impact stores from around Pennsylvania to help support their effort to address the long waits families face for community services. If you would like to share a hardship that you have encountered in support of this campaign, please contact Tom Carasiti at firstname.lastname@example.org or visit their website at www.pawaitinglistcampaign.org
The Children’s Hospital of Philadelphia is conducting a study about the metabolic health of children with Down Syndrome and thyroid treatment. If you are interested in participating or learning more about the study visit CHOP’s research webpage at www.research.chop.edu/
This summer, the PPODS Board has been busy working to update PPODS’ image and explore new programs that will better serve our community and fulfill the PPODS mission. In July, we retained the services of Grant Writer Danielle Cloward, on a temporary basis, who has been helping PPODS identify grants to fund some of our projects and programs. The Board also approved a rebuild of the PPODS website and the redesign of our logo through Bill Pilling Graphics.
Additionally, the Board has been considering a number of new programs to offer to our community, including a partnership with the Learning Program through the Down Syndrome Foundation of Orange County, programs specifically designed for teens, siblings, and new parents, as well as guest speaker opportunities. However, we need to hear from you to know what programs you would like PPODS to provide. It is imperative that we know there is interest from the community before we spend precious time and resources on any program or service.